Sam Edgerley will sort out the mammoth ‘ExtremelyBob 100’ problem in a bid to lift funds for Myeloma UK, a charity near his coronary heart after his finest pal’s dad and “hero” Bob Munro was recognized with the incurable blood most cancers.

Sam, aged 30, who joined the Doncaster Knights in 2015, will set off down the Thames Path from London’s Putney Bridge at 4pm on September 30 and full a mammoth 100-mile loop throughout the subsequent 24 hours.

He shall be joined alongside the way in which by family and friends, together with Bob’s son Joe Munro, who will race the final 26 miles – the equal of a marathon – with him to the end line.

“A 100-mile run is a mere patch on the journey Bob has battled by way of,” stated Sam who now lives in Wandsworth.

“I misplaced my dad after I was fairly younger and I actually valued him as an older male determine.

“He’s every little thing I aspire to be: a tremendous husband and a improbable dad.

“He’s an unimaginable man and we’re all blessed to know him. He has actually impressed me by way of the resilience he has proven during the last 10 years in his combat in opposition to myeloma.”

The father-of-one added: “Bob’s been lucky to journey the explosion in new myeloma medication which have saved him within the sport for the previous 10 years.

“The analysis and growth for these medication has been massively accelerated by patient-inspired fundraising, corresponding to Bob’s personal London to Paris journey a number of years in the past, and quite a few household and mates’ occasions, which funnel cash into Myeloma UK’s scientific trials and advocacy work.

“By January 2022 Bob had exhausted all of the licensed medication however was fortunate sufficient to get on a trial for a very new experimental class of drug.

“He’s since suffered six months of the worst bunch of negative effects and unhealthy luck – together with viral infections, COVID, a broken sacrum leaving him unable to stroll and requiring radiotherapy, his eighth rib fracture and extreme anaemia – however the outcomes have been spectacular, smashing his myeloma to the bottom ranges since prognosis.

“Proof, if ever you wanted it, of the worth of analysis, scientific trials and the fundraising that helps make it attainable.”

Sam performed rugby for the England Sevens squad between 2011 and 2014 earlier than signing with the Doncaster Knights. He stayed with the membership till 2017.

Myeloma happens within the bone marrow and presently impacts over 24,000 individuals within the UK.

Despite being the third commonest kind of blood most cancers, it’s particularly tough to detect as signs, together with again ache, simply damaged bones, fatigue and recurring an infection, are sometimes linked to basic ageing or minor circumstances.

While it’s incurable, myeloma is treatable within the majority of circumstances. Treatment is aimed toward controlling the illness, relieving the problems and signs it causes, and increasing and enhancing sufferers’ high quality of life.

More than half of sufferers face a wait of over 5 months to obtain the fitting prognosis and round a 3rd are recognized by way of an emergency route. By that time, lots of them are experiencing extreme or life-threatening signs.

A eager bicycle owner, Bob had deliberate to journey from Pisa to Rome together with Sam and his household when the pandemic hit, sending his fundraising plans for Myeloma UK to a grinding halt.

Just because the world began to come back out of lockdown, Bob’s most cancers returned forcing him to place the bike journey on maintain as soon as once more.

That’s when Sam got here up with the thought for the ‘ExtremelyBob 100’ as a substitute.

“We wished to do one thing particular to proceed to lift as a lot consciousness and as a lot cash as attainable to fund trials and new medication,” added Sam, who now works as an asset supervisor.

“It actually has been superb to see the tangible distinction that charity occasions corresponding to this have made to Bob and his household during the last 10 years, permitting Bob to fulfill his granddaughter, see his son Ross get married and reside life in nice spirits as he so deserves to.”

Bob Munro stated: “I’m very touched. The different evening I used to be chatting to him and I stated, ‘This is de facto tough, you would possibly get injured, perhaps you need to reduce it all the way down to 100km as a substitute of 100 miles’. The subsequent morning he got here again to me and his message stated, ‘No manner, it needs to be 100 miles’.”

“He is an entire nutter,” added Bob, aged 62, from Windsor. “Everything he does, he goes 100 miles an hour. He is completely superb.”

Sam’s rugby profession apart, the ‘ExtremelyBob 100’ guarantees to be considered one of his most bodily and daunting challenges but.

Being a busy younger dad, for the previous few weeks Sam has run 15 miles to and from work on daily basis to squeeze some much-needed coaching into his packed schedule.

“I used to play skilled rugby however this would be the longest I’ve ever run,” he stated.

“The furthest I’ve ever run is 40 miles. I wished to do one thing that was out of my consolation zone and that will be a battle. But that’s nothing in comparison with Bob’s 10-year battle with myeloma and the resilience he has proven. It’s taken an enormous toll on him and on his household however Bob is so constructive and grabs each minute of life.”

For extra details about myeloma or to get in contact with Myeloma UK go to www.myeloma.org.uk. Myeloma UK runs an Infoline on 0800 980 3332.

In these complicated and worrying occasions, native journalism is extra important than ever. Thanks to everybody who helps us ask the questions that matter by taking out a subscription or shopping for a paper. We stand collectively. Dominic Brown, editor.

Undefined: learnMore

1. In motion

Sam Edgerley performed for the England Sevens

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2. Fundraisers

Sam Edgerley together with his finest pal and Bob Munro’s son, Joe, on the end line of their London to Paris bike journey for Myeloma UK in 2016

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3. Great mates

Bob Munro together with his spouse Linda

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4. Wedding day

Sam Edgerley (centre) at his wedding ceremony in Italy with Bob and Linda Munro

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By Seth A. Dunbar

Seth Dunbar leads clinical research study operations and quality & compliance. He is experienced working with teams to help drug sponsors better leverage eSource data. With 10+ years of experience Seth brings expertise developing eClinical services that integrate data and technology to help companies optimise study execution.

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