Each two years, CISCRP conducts the Perceptions & Insights Survey a web based, world evaluation of public and affected person perceptions, motivations, and experiences with scientific analysis participation with a purpose to monitor traits and establish alternatives to higher inform and have interaction the general public and sufferers as stakeholders and companions within the scientific analysis enterprise.
In an effort to construct off this work, Parexel engaged CISCRP to design a survey particularly for folks and their youngsters with a purpose to higher perceive perceptions and experiences associated to pediatric scientific trials. Particularly, the aim of this survey was to achieve perception into common perceptions of pediatric trials, most well-liked channels of communication, key data mother and father and their youngsters would need about pediatric scientific trials, in addition to previous or present experiences collaborating in pediatric scientific trials.
Through the month of April 2020, CISCRP carried out a web based US based mostly survey amongst 500 mother and father and their youngsters. The survey instrument was based mostly partly on questions posed in previous Perceptions & Insights research with modified language for little one respondents. The survey was distributed on-line. Dad and mom would first take the grownup part of the survey, then ask their youngsters to finish the kid part.
On this report, CISCRP supplies a abstract of those outcomes and compares the outcomes with the baseline Perceptions & Insights Research the place relevant. The findings illustrate what issues most to sufferers and their mother and father and supply methods to greatest help and inform potential pediatric volunteers and their guardians earlier than, throughout, and after the scientific analysis course of.